July 24th 2019
Good news from the battlefield
Right, I received the outcome of my second blood test today. Actually, I already knew what those results were, but I need to hear from the haematologist whether those blood values implicate whatever I think they implicate. I’m a person that wants to be sure no matter what, and due to that I tend to be a perfectionist. Thinking I was right, the truth was that I was wrong. The reason for that is clear: I’m doing this for the first time and my haematologist is doing this for the thousandth time. If I had to place a bet on one of us, it wouldn’t be on myself….
So, what happened was that in my blood the M-Protein was still 6 g/L. With a healthy person, the M-Protein is not traceable in blood and knowing this, instead of thinking “good, it didn’t rise” (like the haematologist does), the perfectionist in me thinks “mmm…..it didn’t drop…”. Something similar happened regarding the Free Light Chains. Last time they were 9,5 mg/L and now they were 24.5 mg/L. That’s within the margins albeit just. The haematologist thinks “good, those Chains are restoring after the transplantation and they tend to rise and drop regularly anyway”, the amateur-haematologist in me is thinking “WTF! They are 2,5 times as high as last time!”
So this is a good example on how cold figures are made warm by my haematologist with years of experience. I’m not ashamed for my thoughts. I just learned, and like everything else in life: every day is a schoolday. When it’s about myself, I tend to be right on top of things. Anyway, the blood part is going okay. The same goes for my heart. According the cardiologist, my cardiac condition had improved enormously. But as I’m still suffering from shortness of breath from time to time, I tend to start a discussion with the man…..which I loose. Obviously.
Furthermore I’ve started with physiotherapy fitness. Normally I tend to have a big mouth but after one hour of physiotherapy, my mouth isn’t that big anymore as I’m thinking I actually am missing some essential body parts. The first time my physiotherapist wanted me to start an exercise with a weight of two kilo’s. I looked at her and laughed a bit. After one repetition, the weight was replaced by one of one kilo and my smile had disappeared. I’ve told about the push-ups I wanted to do last time. Well, I’ve reached an all-time record…..1! So there is progression. Apparently it takes some time before the body is completely recovered. My physiotherapist put it nicely: the oxygen transport system in my body is completely re-inventing itself after the transplantation. And therefor, the waste products in my body are sometimes stuck in places, where they don’t belong. That gives me pain in my body. For 24 hours a day. But the pain is not unbearable, just uncomfortable. Only just before I go to sleep, I take some painkillers and believe me, the hours just before going to sleep and just after waking up, are the most happy hours I experience so far:-).
Nevertheless, things are going okay. Let’s keep it that way! On to the next month and in the mean time keeping myself busy with the physical recovery. And above all: keep on smiling!
To be continued….